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Wednesday 6th August 2014

 
7pm at Luton Rugby Club
 
Please consider attending. New members are very welcome.
Meet people like yourself in a relaxed atmosphere.
Bring a friend or carer if you like.

____

Sunday 13th July 2014

BBQ and Soft Food Party

1pm - 3pm at Luton Rugby Club

Barbecue food and drinks

_____

July 2014

Wednesday 2nd July 7pm

Marie Browne (Macmillan Specialist Psychotherapist) has very kindly agreed to speak at our July meeting, about psychological issues.

Luton Rugby Club

______

June 2014

Wednesday 4th of June 7pm

We have invited John Pickles to attend the 4th of June meeting (7pm) as we intend to make a small presentation to him as a mark of our appreciation.

Luton Rugby Club

May 2014

Wednesday 7th of May 7pm

 

Please consider attending. New members are very welcome.
Meet people like yourself in a relaxed atmosphere.
Bring a friend or carer if you like.

Luton Rugby Club

March 2014

Wednesday 5th of March 7pm

Suzanne Edgington, Holistic Therapist, Naturopath & Bodyworker

Suzanne offers practical advice for both the patient and carer along with techniques and therapies designed to benefit mentally, physically and emotionally.

Luton Rugby Club

February 2014

Wednesday 5th of February 7pm

Matt Corder Health & Wellbeing Officer, Active Luton

Matt will be dropping by to tell us all about the Macmillan Exercise Programme.
 
The pilot scheme is a one year project funded by Macmillan Cancer Support and delivered by Active Luton.  It is based on evidence* that demonstrates that physical activity during and after cancer treatment is associated with improved physical and emotional wellbeing, as well as reducing the risk of other associated health conditions and of some cancers recurring. 
Luton Rugby Club
 

January 2014

The next meeting will be on

Wednesday 8th of January

Rather than on the first Wednesday

which is New Years Day.

 
Luton Rugby Club

December No Meeting

XMAS PARTY

Luton Rugby Club

Wednesday 11th December 7pm

 
 
Luton Rugby Club
September Meeting
 
Wednesday 4th September 7PM
 
K-T Martinelli, who most of you will know as the Head and Neck oncology dietician, will be stopping by to chat to us. K-T was also the driving force behind a campaign to have a soft ice cream machine installed on ward 20 at the L&D where many of you were treated.
 
 
Luton Rugby Club
June Meeting
Wednesday 5th June 7PM

 Rob Bunyan will lead a discussion on Oral Hygiene and Dental care following treatment for Head and Neck Cancer.

Rob Bunyan is an Associate Specialist Oral & Maxillofacial Surgery at the L&D.

 

Luton Rugby Club

May Meeting

Wednesday May 1st at 7pm

The welcome return of the very popular Complementary Therapists based at Luton's Barnfield College.

Massage therapy for free.

Get there early. It is always busy.

 
 
April Meeting
 
Luton Rugby Club

Wednesday 3rd April 7pm

 

Please consider attending. New members are very welcome.
Meet people like yourself in a relaxed atmosphere.
Bring a friend or carer if you like.
 
 
March Meeting
 
Karina Chamberlain  (Macmillan Welfare Advisor) has very kindly agreed to come to speak to us about the changes in welfare benefits.
 
Luton Rugby Club

Wednesday 6th March 7pm

 
 
February Meeting
 
Ideas for a  Outing In Early
Summer Welcome

Luton Rugby Club

Wednesday 6th February 7pm

 
 
January Meeting

Xmas Jumpers Optional .

Luton Rugby Club

Wednesday 2nd January 7pm

 
 

December No Meeting

XMAS PARTY

Luton Rugby Club

Wednesday 12th December 7pm

 
 
November Meeting

Pampered Chef – Cookery and product demo fundraiser – 10% of sales will be returned as funds for the group.

Pampered Chef

Luton Rugby Club

Wednesday November 7th at 7pm

October Meeting

The welcome return of the very popular Complementary Therapists based at Luton's Barnfield College.

Massage therapy for free.

Get there early. It is always busy.

Luton Rugby Club

Wednesday 3rd October 7pm

 
 
September Meeting

Jenny Hunt Advice and Discussion Post-Radiotherapy swallowing difficulties. Swallowing Problems Post Chemo/Radiotherapy

Luton Rugby Club

Wednesday 5th September

7pm

 
 
August Meeting

Luton Rugby Club

Wednesday 1st August 7pm

 
 
July Meeting

Luton Rugby Club

Wednesday 4th July 7pm

 

 
June Meeting

Luton Rugby Club

Wednesday 6th June 7pm

 

 
May Meeting

Luton Rugby Club

Wednesday 2nd May 7pm

 

 
April Meeting

Marisa Richards (Commissioning Manager Cancer NHS Bedfordshire and Luton) Will seeking your views on Radiotherapy treatment in the region.

Luton Rugby Club

Wednesday 4th April 7pm

 

 
March Meeting

This month Fiona Ritchie of RIS Products will be returning. Fiona will talk to the group about her company’s Dry Mouth and Oral Care Products.

Luton Rugby Club

Wednesday 7th March 7pm

 
February Meeting

Louise Bolton (Macmillan CNS) will be along to give us an overview of “The Cancer and Exercise" pilot scheme which is starting this month as a joint initiative between Active Luton and Macmillan.

Luton Rugby Club

Wednesday 1st February 7pm

January Meeting

We would like to have you all back well fed and rested at the

Luton Rugby Club

Wednesday 4th January 7pm

You can wear your Xmas Jumpers if you wish

December No Meeting

XMAS PARTY

Luton Rugby Club

Wednesday 14th December 7pm

November Meeting

Luton Rugby Club

Wednesday 2nd November
 
 Christine Piff Founder/Chief Executive and Project Manager Fiona Ritchie both of Lets Face It have been invited to talk about their work.

October Meeting

Luton Rugby Club
Wednesday 5th October 7PM
 
This Month there is a return match between the Head and Neck Club Members various ailments and the Complementary Therapist's Team from Barnfield College.
A Team of five students currently being tutored at the college will teach us how to relax and will also do battle against our aches and sprains . This is always a well attended event so make sure you turn up for what is usually the most talked about of all our meetings . Expect to get hands on experience of complimentary massage and  relaxation techniques.
 

September Meeting

Luton Rugby Club
Wednesday 7th September 7PM
 
Details to be announced
 

August Meeting

Luton Rugby Club
Wednesday 3rd August 7PM
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.
Meet people like yourself in a relaxed atmosphere.
Bring a friend or carer if you like.

 

June Meeting

Luton Rugby Club
Wednesday 8th June 7PM
Due to other commitments at the Rugby Club the June meeting is the second
Wednesday.
 
This Month Connor, Sam, Aran, and Seb fresh from their successful Iron Man Triathlon will be along to present  a significant cheque to John Pickles (the L&D's Medical Director) who will accept it on behalf of the Ward 20 charitable fund.

May Meeting

Luton Rugby Club
Wednesday 4th May 7PM
 
This Month we are pleased to be having a repeat visit from the Complementary therapist Tutor at Barnfield College along with five of the students in her care. Their last visit is one of the most talked about meetings of all time. Expect to get hands on experience of complimentary massage and  relaxation techniques.
 
Don't Miss It
 

April Meeting

Luton Rugby Club
Wednesday 6th April 7PM
 
Anil Garcia was unable to attend in March as planed so we moved this important discussion back to April. Please attend your view is important.
 
 
Anil is researching
Cancer Patients' experiences on behalf of the
Mount Vernon Cancer Network.
 
 
The focus of this work is to assist
those who wish to return to work
following Cancer treatment.
 
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

March Meeting

Luton Rugby Club
Wednesday 2nd March 7PM
 
Anil Garcia who is researching
Cancer Patients' experiences of returning to work
following Cancer treatment will attend.
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

 

 
 
There will be no
January Meeting this year.
 

February Meeting

 

Luton Rugby Club
Wednesday 2nd February 7PM
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

December Meeting

Luton Rugby Club
Wednesday 1st December 7PM
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

November Meeting

Luton Rugby Club
Wednesday 3rd November 7PM
 
Sam Hunt will be along to tell us about his group of four who will be attempting to complete a Half-Triathlon in the Luton Harpenden Area on the 22nd of December.
They will be raising funds for the Head and Neck Cancer Unit.
 
The Half Triathlon is based on the Ironman 70.3 where the participants have to complete a 1.2 Mile Swim, a 56 Mile Bike Rids followed by a 13.1 mile run. Hopefully Sam will have some breath left to tell us about the challenge and his preparation

 Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

October Meeting

Luton Rugby Club
Wednesday 6th October 7PM
 
Guest Speaker Sue Semper, who is the Macmillan Mount Vernon Cancer Network (MVCN) Cancer Survivorship Lead and Carol Glover will be presenting the National Cancer Survivorship Programme.
 
Carol will focus on the work that is being piloted at Mount Vernon Hospital within the head and neck cancer department

 Please consider attending new members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

September Meeting

Luton Rugby Club
Wednesday 1st September 7PM

 Please consider attending new members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

July Meeting

Luton Rugby Club
Wednesday 7th July 7PM

 Rob Bunyan will lead a discussion on Oral Hygiene and Dental care for Head and Neck Cancer patients.

Rob Bunyan is an Associate Specialist Oral & Maxillofacial Surgery at the L&D.

 

 

Please Complete the 1,000 People Project Survey
A Macmillan Initiative

More details in the Forum

Click Here

 
 

 

Head and Neck Social Group

 

 email

 

The Luton and Dunstable Head and Neck Social Group is an informal gathering of individuals and carers that have been affected by cancer to the head or neck.

Our aim is to share experiences and support  each other. We can help you if you come and you can help us by coming.

The group meets the first Wednesday of each Month at 7pm. The Venue is The Luton Rugby Club

Everyone is welcome regardless of where you were treated. Please consider coming you will be made welcome.                     

New Venue. 1st Wednesday of each Month at The Luton Rugby Club. Click here for Details..

Forthcoming Meetings

BBQ 13th July 2014

The Social Group BBQ went very well thanks the the efforts of a number of volunteers who spent most of the event providing food for others.

We have some pictures of the day but we would be happy to add any others if you email them in to web@hansg.co.uk.

Click here for the pictures.

BBQ and Soft Food Party 1Pm-2pm Sunday 13th July at Luton Rugby Club in Newlands Road Luton.

The Head and Neck social Group would like to invite Members, New Patients, Carers and Family to an informal BBQ at our usual venue Luton Rugby Club.
Barbecue food and drinks
The party starts at 1pm on the 13th of July till around 3pm. There will be a mixture of food available to suit most patients. Children are welcome there is plenty of room for them to run around.

The weather won’t stop play as we have plenty of shelter available and the BBQ won’t get wet.

There is no charge its absolutely free but we do need to know in advan
ce who is coming so we can be sure to feed you properly. Please email web@hansg.co.uk.

Oh and the Rugby Club will have a full licensed bar with soft drinks or tea and coffee also available.

Wednesday 2nd July 2014

Marie Browne (Macmillan Specialist Psychotherapist)

Marie has very kindly agreed to speak at our 2nd July meeting, about psychological issues.

Wednesday 4th June 2014

John Pickles Consultant ENT Surgeon

A number of our members have good reason to recall John Pickles as their consultant surgeon at a time when they desperately needed to be in safe hands.

Recently John announced his retirement and a number of members felt it would be fitting to mark the occasion.

To that end we have invited John Pickles to attend the 4th of June meeting (7pm) as we intend to make a small presentation to him as a mark of appreciation.

Even if you are not a Head and Neck cancer patient, perhaps one of his many ENT successes you are welcome to come and toast John Pickles with us on the 4th.

Wednesday 5th March 2014

Suzanne Edgington, Holistic Therapist, Naturopath & Bodyworker.

Suzanne has been practising since 1996 and will being talking at the next Head & Neck Social Group Meeting Luton on Wednesday 5th March 2014.

Suzanne has recent personal experience of supporting her husband through the processes of a Head & Neck Cancer and is coming to share her story. She will also talk about how some of the therapies she practises, such as Craniosacral Therapy, Massage, Lymphatic Drainage, Acupuncture, EFT, Nutrition and Meditation might benefit those going through treatment for and moving on from cancer. 

Suzanne offers practical advice for both the patient and carer along with techniques and therapies designed to benefit mentally, physically and emotionally.

 

Wednesday 5th of February 7pm

Matt Corder, Health & Wellbeing Officer, Active Luton

 The Macmillan Exercise Programme.

Luton residents who have had or are currently receiving treatment for cancer can take advantage of a new exercise programme led by Active Luton.

The Cancer and Physical Activity Pilot will be running for a year and offer a variety of exercise activities.

Funded by Macmillan Cancer Support, the pilot will be run predominantly from the new  Lewsey Sports Park, with a variety of wet and dry side activities on offer.Active Luton

Staff at the centre will be working closely with Macmillan nurses and experts from Luton and Dunstable hospital to deliver specific exercise programmes which will cater to each individual’s needs.

 

Wednesday January 8th 2014 7pm

For the more hardy of our members there will be a meeting at the Rugby Club on the 8th of January not on New Years Day. Should be a good opportunity to have a quite chat round the table.

Xmas Party Pictures

Alan Wells kindly took a number of pictures at the recent Xmas Party which was very well attended. Thanks to everyone who turned up especially the staff. I have been tempted to add captions to some of the pictures but I have managed to resist.

Click on Dave (The Hat's) picture to see all the photos.

Wednesday December 11th

There will not be a meeting on the first Wednesday in December. Instead the Xmas Party will be on Wednesday the 11th at 7pm.

We will be holding another of our bring a prize raffles so please bring a prize wrapped or otherwise so we can raise funds to cover the buffet and a donation to the Rugby Club

This year we are also able to go back to our previous format where we also had a hamper for a prize. Premier foods have generously donated a number of hampers that Macmillan are distributing on their behalf.

We have cadged one and we urge you to dig deep for the extra tickets in order to boost the group's funds.

There will be a buffet on offer as usual and  following Karen's successful effort last year she will be hosting the quiz again.

You are very welcome to bring a guest with you. This is an open invitation to patients, carers, your relatives, hospital staff and consultants.

The Rugby Club has a full bar at good prices. Come and enjoy some good company.

Wednesday 4th September 7PM

K-T Martinelli, who most of you will know as the Head and Neck oncology dietician will be stopping by to chat to. K-T was also the driving force behind a campaign to have a soft ice cream machine installed on ward 20 at the L&D where many of you were treated.

K-T's visits are always enlightening and her direct and open approach usually gets a good discussion going. More details to follow.

 Armchair Theatre

Our very own Ian Bridgeman was chosen to take the lead role in an Educational Video aimed at Doctors, Dentists and Pharmacists. The 10 minute video, made and distributed under the direction of the Mount Vernon Trust can be viewed by clicking on the "a star is born" logo.

 
 
 
Wednesday 5th June 7PM

Rob Bunyan leads a discussion on Oral Hygiene and Dental care following treatment for Head and Neck Cancer.

If you have questions about dental care following Surgery or Treatment Rob will be happy to advise.

 

       Wednesday May 1st at 7pm

Now classed as regulars the Complementary Therapists Team based at Luton's Barnfield College are making another visit to the Rugby Club.

Put this in your diary.

The therapists are by far the best supported of all our functions. Get there early. It is always busy.

Keith Foster

31st May 1938 - 2nd March 2013

It is with great sadness that I have to report that Keith Foster passed away on the 2nd of March 2013.

Keith was a tireless worker and succeeded in bringing about many positive changes that improved the  experience for Cancer Patients.

There was a Service of Thanksgiving at Ashley Green on the 15th of March which completely packed St. John Evangelist Church.

We are working to establish a fitting memorial for Keith and we hope to have news of that shortly.

We are happy to announce that the Head and Neck Social Group won a Silver award from the Mouth Cancer Foundation.

The Foundation reviews the progress and commitment of Support Groups and their future plans bi-annually .

Attached to the award is a £1,000 cash donation to assist in further developing the group.

Xmas Party Wednesday December 12th

There will not be a meeting on the first Wednesday in December. Instead the Xmas Party will be on Wednesday the 12th at 7pm.

A buffet has been arranged. Thanks to Matt’s partner Karen her daughter is organising and running a Xmas quiz for us on the night. There will be prizes for the winning table.

We will be holding another bring a prize raffle so please bring a prize wrapped or otherwise so we can raise funds to cover the buffet and a donation to the Rugby Club.

You are very welcome to bring a guest with you. This is an open invitation to patients, carers, your relatives, hospital staff and consultants.

The Rugby Club has a full bar at good prices. Come and enjoy some good company.

(If you don’t have transport let us know we will try to help) Contact Derek web@hansg.co.uk.

Pam Blackburn

Many of you will know that in lieu of flowers at Pam’s recent funeral relatives requested that a donation be made to Cancer Research UK.

The collection we made at the Rugby Club raised £80.00 which Hugh passed on to Cancer Research.

Thanks to you all for contributing.

 

Pampered Chef Fundraiser Update

The Pampered Chef fundraiser that Amanda Organised for us went well last Wednesday.  We made £54 from the sale of the loPampered Chefvely cupcakes donated by Carolyn and the raffle.  Keith won a £20 voucher.  We also will be receiving around £26 commission from sales on the night and I have agreed to have a home party in the new Year. 

So about £80 made in total, a welcome addition to our funds.

The Recipes for both the Broccoli Dip and the Chocolate Molten Lava Cake are her on the website for those who requested them. Recipes Click Here

www.pamperedchef.com

Draft Constitution

As the group has been getting bigger and its operations are becoming more complex Hugh and Derek have been working to prepare a draft  constitution for the group. The officers, representatives from the L&D and other committee members also need to be protected from events outside of their control and some basic operational rules need to be laid down.

There is a draft document now available Click Here for Word Document. Everybody is encouraged to comment on the draft and make suggestions or objections as they see fit.

The timescale is for the first round of submissions to be made by Friday the 23rd of November. At that point depending on the depth of the changes the constitution will be adopted with minor changes or it will be re-submitted for further comment or pea vote if required.

It is envisaged that Hugh, as Chairman, will will consider all submissions and take any decisions required for the benefit of the group in total.

Hints and Tips for Swallowing

Following on from Jenny Hunt’s September talk on swallowing problems a number of personal recommendations were made by the members all of which have experienced varying degrees of Swallowing or Taste problems.

These have been collected together here for the benefit of everyone  

Click Here for Details

Forthcoming Meetings

November 7thPampered Chef – Cookery and product demo fundraiser – 10% of sales will be returned as funds for the group. There will also be a raffle. (which, based on history,  Amanda will no doubt win). There will be a limited supply of some lovely cupcakes on sale on the night, all monies to the Head and Neck Social Group

 

A Drink and a foot massage. Could be a winner

October 3rd – Complementary therapists from Barnfield College. Put this in your diary. The therapists are by far the most popular attraction we have ever had.

 

Canal Trip 27th May 2012

For Pictures Click Here

We all had a great day out on the Canal at Pitstone on Sunday. Twenty one of us, including some relatives and friends, enjoyed some of the best weather we've had this year.

The Cruise company were more than fair, they found a few extra public trippers and just charged us for the Twenty One that we had booked.

One of the public trippers kindly took the group picture above.

I will have some more pictures put up shortly, I have some to process and I know that Jim has. Anyone else that has a good shot please mail it to me.

Hopefully this will be the first of a number of affordable social events. Suggestions are welcome, if you have a trip that you want to organise let me know.

April Meeting

Marisa Richards (Commissioning Manager NHS Beds and Luton) will be addressing the Group at the 4th of April Meeting.

Marisa is interested in the group’s views about Radiotherapy. Marisa would like to get the views of those who agreed to Radiotherapy and also those of who chose not to.

She is also interested in topics such as the options you might have been given by your consultant and how the journey time might have affected you decision to attend.  

Please turn up and participate in the discussion. Your views can affect the  policy and the outcome for future patients in this region.

Day Room Ward 20

As we reported before the Day Room alongside Ward 20 is being used for Head and Neck Members to meet with current patients.

Whilst it was a nice quiet space it was a typical Hospital Room with poor furnishings. The room has now had a great makeover with input from the Head and Neck Cancer Nurses.

Amanda Naylor has sent over the latest picture. I'm sure anyone who has used the room in the past will immediately notice the difference. 

March Meeting

Fiona Ritchie will be answering questions, offering hints and tips relating to dry mouth and oral care.

Fiona works for RIS Products Ltd www.risproducts.co.uk promoting a oral healthcare products which are particularly relevant to Head and Neck Cancer Patients.

Fiona Ritchie doubles as project manager for Christine Piff Letsfacit support network for people with facial disfigurement www.lets-face-it.org.uk.

Fiona previously accompanied Christine on her visit to the Head and Neck Support Group’s meeting in November.

New Year New Outlook

 

Louise Bolton who is a Macmillan Primary Care Oncology CNS will be along to tell us about “The Cancer and Exercise pilot which is starting this month.

 

Active Luton and Macmillan are working together to look at exercise that can be offered to cancer patients during treatment as it is shown to improve or prevent the decline of physical function without increasing fatigue.

Louise would like to take the opportunity to explain the pilot scheme and hear what exercise patients might like to take part in either individually or as a group.  Louis will also explain how to obtain an assessment to join the pilot or how attend drop in centre for further information.

You can find out more about the scheme by downloading the PDF file :- Physical Activity

Happy New Year

Thanks to everyone who came we had another great Xmas Party at the Rugby Club this year. Thanks in particular to those who bought a prize for our raffle the sale of tickets raised £125 which very nearly paid for the catering. As a thank you for hosting the monthly meetings (at no charge to the group) we made a modest donation to the Rugby Club on behalf of all of us.

Thanks to anyone who has done something to make the Social Group a growing success over the last year especially Hugh who continues in his role as Chairman of the Group. We shouldn’t forget the Rugby Club staff who sometimes turn up for no other reason than to host our evenings. Thank you

I think a special mention should also go to Keith who many of you will know has required some surgical maintenance over the last couple of weeks. He is now back home and doing ok. I’m sure you will all join me in wishing him well.

Don’t forget we will be back at the Rugby Club January 4th Please make it worthwhile for the Rugby Club to open the doors. Merry Xmas and a Happy New Year.
 

 

 

Xmas Party 7:00 PM

  Luton Rugby Club

 14th December 2011

It's that time again and the Head and Neck Social Group would like you to be our guest and join us for a drink and a buffet at our Xmas Party Wednesday December 14th.

This year we have splashed out on a floor show and we have booked Russ Styler who will tour the tables and perform magic close up.

You are very welcome to bring a guest with you. This is an open invitation to patients, carers, relatives, hospital staff and consultants.

 There will also be a Raffle on the night to raise funds please would you bring a prize. The Rugby Club has a full bar at good prices. Come and enjoy some Good Company.

(If you don’t have transport let us know we might be able to help.) Contact Derek web@hansg.co.uk.

  

Pioneering Hospital Buddies

Being diagnosed and treated for Head or Neck Cancers is a difficult time for anyone. Members of the L&D Head and Neck Cancer Social Group have pioneered a new service that makes two members available each week to advise and support recently treated patients. Some of the Head and Neck Buddies from the L&D Head and Neck Social Group

The system works with the assistance of the Head and Neck Specialist Nurse Carole Glover and Jenny Hunt Speech and Language Therapist.

The Group is organised into teams of two who make themselves available on a rota system. Visits are not required every week but when they do take place they are received well.

The team have all been vetted with the assistance of the hospitals volunteer service and report to the ward management on arrival. We are fortunate to have a good size day room where the group can base themselves.

The system has been operational since the beginning of Summer and we will be looking at the results of their efforts in the new year. If you wish to start a similar scheme or have questions regarding its operation please mail web@hansg.co.uk.

Lets Face It

Thanks to Lets Face It founder Christine Piff and Fiona Ritchie we had a very good meeting in November ChristiChristine and Fiona with some of  the groupne proved to be a very positive role model for victims of Head or Neck Cancer.

www.lets-face-it.org.uk

It was a great presentation and we have asked Fiona to come and talk to the group about dry mouth sometime in the future.

Lets Face it November 2nd 2011

On Wednesday 2nd of November Christine Piff Founder/Chief Executive and Project Manager Fiona Ritchie both of Lets Face It have been invited to talk about their work.
Christine Piff
Christine Piff is the founder of Let's Face It;
in the loss of half her face, including the left eye.
Christine founded the network in 1984
having experienced the loneliness and
despair that living with a 'changed' face brings.

Fiona Ritchie will be on hand to offer advice on managing the symptoms of dry mouth.

 October 2011 Barnfield Complementary Therapist Team

As ever the Barnfield team put in a real effort to make the evening another great one. Perhaps the locakl pub should try thisA Drink and a foot massage. Could be a winner

 

 

 

 

 

Taking Pictures in the Bar is difficult because of the lighting but here are a few to give a flavour of the night. We hope to have them back again in 2011.www.barnfield.ac.uk

2011 Relay for Life

Saturday 17th and Sunday 18th saw the 2011 Relay for Life weekend of entertainment and fundraising for Cancer Research UK take place at Stockwood Park Luton.

If you have never been to Relay you are missing a great party in the park and a chance to support sponsored teams of walkers making a 24hour assault on the athletics track to raise funds for Cancer Research.

Both the organisers and the teams put on sideshows and all kinds of entertainment. Best of all its a party atmosphere.

There is always a very professional stage and this year was no exception with some excellent music, singing, excerpts from musicals and even a choir. The more energetic joined in for a long Zumba workout on the grass to some good music.

See all our pictures Click Here.

Saving Faces Family Bike Ride

Jim Lucas and Derek Tidman had a great day out with the Maxillofacial team at the Redbridge Cycle Centre in East London on Saturday the 3rd.

We relaxed whilst the team pounded around a particularly steep track in order to raise money for the Charity Changing Faces. www.savingfaces.co.uk

Click the team picture for a page of photos of the day. It's not to late to donate just follow the link on the page.

Raising Money Saving Faces

Chi-Hwa Chan Consultant Oral and Maxillofacial Surgeon at Luton and Dunstable Hospital has co-opted a team of clinicians from the L&D, Bedford and family to raise money for Saving Faces.

The team will have their fitness tested on Saturday 3rd September at the Redbridge cycle centre in Ilford.

The team also aims to raise at least £500 to pay for a statistical analysis of the outcome of the treatment of every mouth cancer patient treated in their unit over the past 9 years.

The statistician who will conduct the review works at Mount Vernon Cancer Centre and she has offered to donate the money she receives to the Mount Vernon Research Fund!

This vital information is not currently available. The outcome of treatment is of paramount importance in order to modify and improve service to patients.

The team would be happy to receive any donations however small. Their online Team Sponsorship Page Click Here

Free Travel Pass

Mouth Cancer 10 km Walk Hyde Park London Saturday 17th September 2011

There are a limited of grants available for members of Head and Neck Cancer and Laryngectomy support groups to attend the annual Mouth Cancer Walk in Hyde Park London.

The MouthClick for a bigger picture Cancer 10 KM Walk is designed to increase awareness of head and neck cancers, celebrate survivorship, create an opportunity to meet friends, remember lost dear ones, and also have a fun day! Everyone’s Invited. 13.00 arrival 14.00 walk.

Last year Amanda Naylor (Head and Neck Support Nurse) her Husband, K-T Martinelli (Head and Neck Macmillan Oncology dietitian) and Susy Smallbones (ENT Nurse Practitioner) raised £700 at the event.

www.mouthcancerwalk.org

Call 01924 950 950 Email mel@mouthcancerfoundation.org

 

Strawberries and Cream at the Rugby Club

Wednesday 6th July

Summer is here and to celebrate we are throwing a welcome party to encourage new and existing members to attend. There is no charge just bring yourself and a friend if you wish.

June Meeting is the Second Wednesday due to a prior commitment at the Rugby Club.

Wednesday 8th June 7pm

Raising money (the hard way). Find Out More about IronMan Half Triathlon

All the pledges have been called in and the moneys now been collected  Aran, Connor, Sam and Seb raised an amazing total of £5,094 which is a great result.

John Pickles (the L&D's Medical Director) took time out to accept the cheque on behalf of Ward 20 at our June Meeting at the Luton Rugby Club.

Well done Lads.

(Ironman & 70.3 are recognised as registered trademarks of WTC and are used to link to the WTC website for information)

Raising "Loads of money (the hard way)"

Due to the varying commitments of the team members the Ironman Half-Triathlon took place at short notice on the 10th of April.

James Lucas was on hand to see them finish.

"Everyone seemed to enjoy it, surprisingly nobody looked exhausted, estimated timings for each stage were pretty close except for 2 punctures on the cycling stage.

We shook a bucket at the swimming pool which ended up with a few pence under £100 and another was shaken at the pub that looked fuller but hadn't been counted.

A quick peek at the just giving page has a tally over £2800 @ 56% of target and the text and puns have been amended to announce that the boys completed their challenge with the page being kept open for another month." 

 

The Ironman Half Triathlon consists of a: Find Out More about IronMan Half Triathlon

1.2 Mile Swim

56 Mile Bike Ride

13.1 Mile Run

This severe test of stamina and determination was in order to raise funds for the Luton and Dunstable Hospital, Head and Neck Cancer Unit.

"Getting back to work" Have your Say

Anil Garcia will be attending our April meeting to get your views and to pass on what's been learnt to date.

Mount VernonVocational Rehabilitation in Cancer

Vocational rehabilitation has been described as a process whereby those disadvantaged by illness or disability can be enabled to access, maintain or return to employment, or other useful occupation (British Society of Rehabilitation Medicine, 2003).

The Cancer Reform Strategy, recognised the needs of, and lack of services for, people living with the side effects and long-term consequences of cancer treatment. As a result of this, the National Cancer Survivorship Initiative (NCSI) was established, led by the Department of Health and Macmillan Cancer Support.

A project group was set up to review the provision of vocational rehabilitation and develop a vocational rehabilitation service model that could be piloted.

Mount Vernon Cancer Network is a pilot site for the development of a Vocational Rehabilitation Model and work is now underway to discover the availability of employment support for people after a cancer diagnosis, the information available to staff to enable them to answer queries and concerns, and to employers to enable them to support their work force effectively.

Feedback is being sought from Patients and Carers on their experiences of getting back to work to enable the production and availability of effective and supportive  help.

 WE WOULD WELCOME YOUR EXPERIENCES

If you would like to take part in this project and have experiences that you feel could help plan for the future please contact the project lead on the details below.  Feedback can be given either by Phone, email or Face to Face.

 For further information please contact Project Lead – Anil Garcia on 07889205064 or via email: anil.garcia@nhs.net 

Xmas Party 7:00 PM Luton Rugby Club

15th December 2010

It's that time again and the Head and Neck Social Group would like you to be our guest and join us for a drink and a buffet at our Xmas Party Wednesday December 15th.

You are very welcome to bring a guest with you. This is an open invitation to patients, carers, relatives, hospital staff and consultants.

Liza Pheazey will be running a Prize Quiz. The Rugby Club caterers are supplying the Buffet. There will also be a Raffle on the night to raise funds. The Rugby Club has a full bar at good prices. Come and enjoy some Good Company.

(If you don’t have transport let us know we might be able to help.) Contact Derek web@hansg.co.uk.

Raising money "the hard way"

NB. Due to the severe weather in late November and December the team have been unable to train for the bike ride and have taken the reluctant decision to postpone the Half Triathlon until the Spring. More News Later

On the 22nd of December Sam Hunt and three friends will attempt to complete an unofficial Ironman Half-Triathlon in the Luton Harpenden Area.

The Ironman Half Triathlon consists of a: Find Out More about IronMan Half Triathlon

1.2 Mile Swim

56 Mile Bike Ride

13.1 Mile Run

This severe test of stamina and determination is in order to raise funds for the Luton and Dunstable Hospital, Head and Neck Cancer Unit.

Sam will be along to the Head and Neck Social Group Meeting on the 3rd of November to tell us all about the challenge and what it takes to prepare for it. Connor, Sam, Aran, and Seb have set up a just Giving Page http://www.justgiving.com/halfironmen.

For those of you who don't know Just Giving is safe secure way of giving that also credits the charity with a tax rebate on all donations given by UK Taxpayers. (Just Giving do not sell, use your details or send unwanted emails.

(Ironman & 70.3 are recognised as registered trademarks of WTC and are used to link to the WTC website for information)

Raising money "its a Walk in the park"

To mark tClick for a bigger picturehe countdown to Mouth Cancer Awareness Week between 14th and the 20th November 2010 the annual Mouth Cancer 10KM Awareness Walk took place in Kensington Gardens London on the 18th of September.

This year Three Members of the Head and Neck Team at the Luton and Dunstable Hospital completed the 10k walk. The sponsored walk attempts to raise awareness of mouth cancer.

Between the three, Amanda Naylor (Head and Neck Support Nurse) with her Husband, K-T Martinelli (Head and Neck Macmillan Oncology dietitian) and Susy Smallbones (ENT Nurse Practitioner) over £700 was raised for charity

“I scream, you scream, we all scream — for ice cream!”

Those of you who have been treated at the L&D will already know the hospital’s head and neck oncology dietician Katrina (K-T) Martinelli. K-T has been the driving force behind a campaign to have a soft ice cream machine installed as part of the specialist cancer unit.

The machine has now been installed on the ward and is providing high calorie, high protein food to patients. As many readers will already know head and neck cancer sufferers often have difficulty eating especially just after treatment.

K-T explained the benefits. “Ice cream is an acceptable food for most people so our patients will have available at all times a food which will not only help them achieve their nutritional requirements but that is easy to eat and will not cause embarrassment in the process. Confidence in eating and swallowing safely will be restored much quicker.”

Mr John Pickles, Divisional Director of Surgery and consultant Ear, Nose and Throat surgeon at the L&D said,

“Head and neck cancer patients are often admitted to Luton & Dunstable hospital with pre existing, nutritional problems since the site of this disease makes people more vulnerable to malnutrition even before diagnosis.  Nutrition plays a key role in successful treatment of cancer of the head and neck and the ice cream machine brings many benefits for our patients who can face a slow and arduous recovery after very complex surgery.” 

The money to purchase the ice-cream machine was donated by head and neck cancer patients and the hospital will underwrite the future maintenance costs.  Patients from the Cancer Service users and the Head and Neck Cancer Support Groups are backing the introduction of the ice-cream machine and will be promoting its use in the hospital.

Although its a simple idea the beneficial impact on patients cannot be underestimated. We hope this initiative will be rolled out elsewhere as it deserves to succeed.

The media also liked the idea with a TV crew turning up to talk with K-T and Ronnie Barbour inviting K-T on to the Nine on BBC 3 Counties. K-T turned in a great performance, which if you didn't catch, can be played in Windows Media Player from this site by clicking here. K-T and Ronnie. It will take a little time to load.

Contributions to support the maintenance or towards further machines would be welcome. If you wish to contribute you can email the Treasurer of the Head and Neck Social Group for details.


L&D Foundation Trust AGM

K-T took the Ice Cream Machine to the Foundation Trust's Annual Members Meeting on 20th September.Click on K-T & Spencer to enlarge

K-T is joined here by Spencer Colvin Chairman of the L&D and our very own James Lucas representing the Head and Neck Social Group.

Spencer Colvin is an enthusiastic supporter of K-T's CoolAid Project to improve the nutrition of Head and Neck Cancer Patients.

Hansg didn't miss the opportunity to rattle a tin for the CoolAid Project and we raised a few pounds towards maintenance of the machine.

Launch of CoolAid

To confirm the Head and Neck Social Group's support for K.T's Ice Cream project we are pleased to announce the formation of CoolAid.

CoolAid is the collective banner under which we hope everyone will come together to raise funds and awareness for K.T's project.

Luton Rugby Club be the first fundraisers to use the new logo at their Hawaiian Night on Saturday 30th of October.

For more details contact Derek Tidman web@hansg.co.uk

Relay for Life

We had another great day at the Luton Relay for Life event in Stockwood Park. Even though the weather in mid September can be variable the rain mostly held off and the sun shone on the Saturday.

Six or seven of us turned up from Hansg along with a few other faces that we recognised from other support and fund raising groups.

As usual Susan Blee was racing around forcing the whole thing to work. As the picture will attest, its almost impossible to stop her for enough time to take her picture.

As has become a tradition for Dave and I we managed to get another picture of Dave with the Mayor and Kelvin Hopkins the local MP.

Click on any picture and it will take you to the collection where you can click on any thumbnail to see the full size pictures.

 

Hawaiian Night at the Luton Rugby Club

Luton Rugby Union Football Club have confirmed their commitment to the Head and Neck Social Group and the CoolAid Project which is the clubs chosen Good Cause for the season.

Alongside their own Club development fundraising, Luton Rugby Club will also use its events program to raise money for CoolAid.

The first of these events will be a Hawaiian Night, to celebrate the beginning of the season and the end of summer. Taking place on Saturday 18th of September 2010 the night will commence directly after the 1st XV match versus Hereford at Newlands Road, Luton.

All supporters will gain free entry and parking, bars open at Midday, game kicks off at 3pm.

The Club will be pre-selling wristbands for the Hawaiian Night wristband wearers will benefit from special prices at the bar. Wristbands will be available at £5 this week at the club and at the match on Saturday. With a live band starting at 5pm, food and full bar available throughout the night, a great evening is predicted.

The second event will be held on Saturday 30th of October, with details for this event being confirmed within the coming month.

For further information please contact the Luton Rugby Union Football Club Office on 01582 720355.


A message from our

Chairman Hugh Mc Grath.

All of us have been diagnosed, treated or have cared for someone who has suffered from Head and Neck Cancer.

Some of us still have our sense of humour; some of us have even retained most of our intelligence. Some know how to cook, fix cars, sew, weld, paint and decorate, plumb, garden and possibly how to milk cows.

We can be grumpy sometimes, irritable at others. Sometimes we hate not being able to eat what we want. Other times we hanker after the way things used to taste. Occasionally we can be entertaining and good fun to be with.  

 We all have experience that we are happy to share. We all understand what its like to be launched back into the world with the collateral damage caused by surgery and radiotherapy.  

We don’t really do that much, we meet, we often have a guest who has a relevant skill and we chat for a bit.

Most of the time we just sit around getting to know each other.

What we would like is for you to join us so that we can have a bigger and better group. In order to make the group a little more social we have moved our venue to The Luton Rugby Club which is close by J10 of the M1.

We made the move to somewhere with a bar (coffee is also available) because we know some people just don’t like hospitals.

Our venue is a quiet private bar at the club where we can socialise or have presentations without being disturbed.

We can be a big help to those of you just coming to terms with the speed and savagery of what happened to you and in return you can help us grow into something worthwhile.

If you are a carer you are welcome to come along with or without your charge and see how we can help. If you have been treated elsewhere you are still very welcome.

Hugh

 
  Welcome to the L&D We are Macmillan Cancer Support