Hints and Tips for Swallowing
As a result of Jenny Hunt’s September
talk on swallowing problems a number of
personal recommendations were made by
the members all of which have
experienced varying degrees of
Swallowing or Taste problems.
Please be aware that if you are having
difficulty swallowing you should be
under the care of a Speech and Language
Tinned or Fried
fresh tomatoes might be difficult tinned
or fried tomatoes with a meal assists
Vivil Sugar Free Mints
breads or Rye Breads can sometimes be
easier to eat rather than softer regular
might appear to be counter intuitive
fried bread (or egg fried bread) is
often easier to eat than ordinary bread
and certainly easier than toast.
report that taking tablets with Milk
rather than Water makes swallowing them
Jellies and Trifles
are having trouble swallowing don’t
ignore the things that are nice to eat
just because you think you should be
eating meat and two veg.
Cookers are a great way of making food
tender and having hot food available
whenever you feel ready to eat.
are an especially good way of adding
moisture to rice dishes. Instant Miso
soup is especially suited to oriental
bags help to keep as much moisture as
possible in meat meals.
extra gravy it helps to ease food down.
warm or hot drink with a meal makes it
easier to tolerate a wide range of
“I scream, you scream, we all
scream — for ice cream!”
Those of you who have
been treated at the L&D will
know the hospital’s head and neck oncology dietician Katrina
(K-T) Martinelli. K-T has been the driving force behind a
campaign to have a soft ice cream machine installed as part
of the specialist cancer unit.
The machine has now
been installed on the ward and is providing high calorie,
high protein food to patients. As many readers will already
know head and neck cancer sufferers often have difficulty
eating especially just after treatment.
K-T explained the
benefits. “Ice cream is an acceptable food for most people
so our patients will have available at all times a food
which will not only help them achieve their nutritional
requirements but that is easy to eat and will not cause
embarrassment in the process. Confidence in eating and
swallowing safely will be restored much quicker.”
Mr John Pickles,
Divisional Director of Surgery and consultant Ear, Nose and
Throat surgeon at the L&D said,
“Head and neck cancer
patients are often admitted to Luton & Dunstable hospital
with pre existing, nutritional problems since the site of
this disease makes people more vulnerable to malnutrition
even before diagnosis. Nutrition plays a key role in
successful treatment of cancer of the head and neck and the
ice cream machine brings many benefits for our patients who
can face a slow and arduous recovery after very complex
The money to purchase
the ice-cream machine was donated by head and neck cancer
patients and the hospital will underwrite the future
maintenance costs. Patients from the Cancer Service
users and the Head and Neck Cancer Support Groups are
backing the introduction of the ice-cream machine and will
be promoting its use in the hospital.
Although its a simple idea the beneficial impact on patients
cannot be underestimated. We hope this initiative will be
rolled out elsewhere as it deserves to succeed.
The media also liked
the idea with a TV crew turning up to talk with K-T and
Ronnie Barbour inviting K-T on to the Nine on BBC 3
Counties. K-T turned in a great performance, which if you
didn't catch, can be played in Windows Media Player from
this site by clicking here.
It will take a little time to load.
Contributions to support the maintenance or towards further
machines would be welcome. If you wish to contribute you can
Treasurer of the Head and Neck Social
Group for details.
L&D Foundation Trust AGM
K-T took the Ice Cream Machine to the
Foundation Trust's Annual Members Meeting on 20th September.
K-T is joined here by Spencer Colvin Chairman
of the L&D and our very own James Lucas representing the
Head and Neck Social Group.
Spencer Colvin is an enthusiastic supporter
of K-T's CoolAid Project to improve the nutrition of Head
and Neck Cancer Patients.
Hansg didn't miss the opportunity to rattle a
tin for the CoolAid Project and we raised a few pounds
towards maintenance of the machine.
Launch of CoolAid
To confirm the Head and Neck Social Group's
support for K.T's Ice Cream project we are pleased to
announce the formation of CoolAid.
CoolAid is the collective banner under which
we hope everyone will come together to raise funds and
awareness for K.T's project.
Luton Rugby Club be the first fundraisers to
use the new logo at their Hawaiian Night on Saturday 30th of
For more details contact Derek Tidman
Relay for Life
another great day at the Luton Relay for Life event in
Stockwood Park. Even though the weather in mid September can
be variable the rain mostly held off and the sun shone on
seven of us turned up from Hansg along with a few other
faces that we recognised from other support and fund raising
usual Susan Blee was racing around forcing the whole thing
to work. As the picture will attest, its almost impossible
to stop her for enough time to take
become a tradition for Dave and I we managed to get another
picture of Dave with the Mayor and Kelvin Hopkins the local
Click on any picture and
it will take you to the collection where you can click on
any thumbnail to see the full size pictures.
Night at the Luton Rugby Club
Rugby Union Football Club have confirmed their commitment to
the Head and Neck Social Group and the CoolAid Project which
is the clubs chosen Good Cause for the season.
Alongside their own
Club development fundraising,
Luton Rugby Club will also use its events
program to raise money for CoolAid.
The first of these
events will be a Hawaiian Night, to celebrate the beginning
of the season and the end of summer. Taking place on
Saturday 18th of September 2010 the night will commence
directly after the 1st XV match versus Hereford at Newlands
All supporters will
gain free entry and parking, bars open at Midday, game kicks
off at 3pm.
The Club will be
pre-selling wristbands for the Hawaiian Night wristband
wearers will benefit from special prices at the bar.
Wristbands will be available at £5 this week at the club and
at the match on Saturday. With a live band starting at 5pm,
food and full bar available throughout the night, a great
evening is predicted.
The second event
will be held on Saturday 30th of October, with details for
being confirmed within the coming month.
For further information
please contact the Luton
Rugby Union Football Club Office on 01582 720355.
Hugh Mc Grath.
of us have been diagnosed, treated or have cared for someone
who has suffered from Head and Neck Cancer.
of us still have our sense of humour; some of us have even
retained most of our intelligence. Some know how to cook,
fix cars, sew, weld, paint and decorate, plumb, garden and
possibly how to milk cows.
can be grumpy sometimes, irritable at others. Sometimes we
hate not being able to eat what we want. Other times we
hanker after the way things used to taste. Occasionally we
can be entertaining and good fun to be with.
all have experience that we are happy to share. We all
understand what its like to be launched back into the world
with the collateral damage caused by surgery and
do that much, we meet, we often have a guest who has
a relevant skill and we
chat for a bit.
of the time we just sit around getting to know each other.
we would like is for you to join us so that we can have a
bigger and better group. In order to make the group a little
more social we have moved our venue to
The Luton Rugby Club which
is close by J10 of the M1.
made the move to somewhere with a bar (coffee is also
available) because we know some people just don’t like
Our venue is a quiet
private bar at the club where we can socialise or have
presentations without being disturbed.
can be a big help to those of you just coming to terms with
the speed and savagery of what happened to you and in return
you can help us grow into something worthwhile.
you are a carer you are welcome to come along with or
without your charge and see how we can help. If you have
been treated elsewhere you are still very welcome.