drupal analytics
 
   email   home
 


L&D Hospital
Macmillan Support
Contacts
Directions and Maps
Luton Rugby Club
About us
My story

December No Meeting

XMAS PARTY

Luton Rugby Club

Wednesday 12th December 7pm

 
 
November Meeting

Pampered Chef – Cookery and product demo fundraiser – 10% of sales will be returned as funds for the group.

Pampered Chef

Luton Rugby Club

Wednesday November 7th at 7pm

 
 
October Meeting

The welcome return of the very popular Complementary Therapists based at Luton's Barnfield College.

Massage therapy for free.

Get there early. It is always busy.

Luton Rugby Club

Wednesday 3rd October 7pm

 
 
September Meeting

Jenny Hunt Advice and Discussion Post-Radiotherapy swallowing difficulties. Swallowing Problems Post Chemo/Radiotherapy

Luton Rugby Club

Wednesday 5th September

7pm

 
 
August Meeting

Luton Rugby Club

Wednesday 1st August 7pm

 
 
July Meeting

Luton Rugby Club

Wednesday 4th July 7pm

 

 
June Meeting

Luton Rugby Club

Wednesday 6th June 7pm

 

 
May Meeting

Luton Rugby Club

Wednesday 2nd May 7pm

 

 
April Meeting

Marisa Richards (Commissioning Manager Cancer NHS Bedfordshire and Luton) Will seeking your views on Radiotherapy treatment in the region.

Luton Rugby Club

Wednesday 4th April 7pm

 

 
March Meeting

This month Fiona Ritchie of RIS Products will be returning. Fiona will talk to the group about her company’s Dry Mouth and Oral Care Products.

Luton Rugby Club

Wednesday 7th March 7pm

 
February Meeting

Louise Bolton (Macmillan CNS) will be along to give us an overview of “The Cancer and Exercise" pilot scheme which is starting this month as a joint initiative between Active Luton and Macmillan.

Luton Rugby Club

Wednesday 1st February 7pm

January Meeting

We would like to have you all back well fed and rested at the

Luton Rugby Club

Wednesday 4th January 7pm

You can wear your Xmas Jumpers if you wish

December No Meeting

XMAS PARTY

Luton Rugby Club

Wednesday 14th December 7pm

November Meeting

Luton Rugby Club

Wednesday 2nd November
 
 Christine Piff Founder/Chief Executive and Project Manager Fiona Ritchie both of Lets Face It have been invited to talk about their work.

October Meeting

Luton Rugby Club
Wednesday 5th October 7PM
 
This Month there is a return match between the Head and Neck Club Members various ailments and the Complementary Therapist's Team from Barnfield College.
A Team of five students currently being tutored at the college will teach us how to relax and will also do battle against our aches and sprains . This is always a well attended event so make sure you turn up for what is usually the most talked about of all our meetings . Expect to get hands on experience of complimentary massage and  relaxation techniques.
 

September Meeting

Luton Rugby Club
Wednesday 7th September 7PM
 
Details to be announced
 

August Meeting

Luton Rugby Club
Wednesday 3rd August 7PM
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

 

June Meeting

Luton Rugby Club
Wednesday 8th June 7PM
Due to other commitments at the Rugby Club the June meeting is the second
Wednesday.
 
This Month Connor, Sam, Aran, and Seb fresh from their successful Iron Man Triathlon will be along to present  a significant cheque to John Pickles (the L&D's Medical Director) who will accept it on behalf of the Ward 20 charitable fund.

May Meeting

Luton Rugby Club
Wednesday 4th May 7PM
 
This Month we are pleased to be having a repeat visit from the Complementary therapist Tutor at Barnfield College along with five of the students in her care. Their last visit is one of the most talked about meetings of all time. Expect to get hands on experience of complimentary massage and  relaxation techniques.
 
Don't Miss It
 

April Meeting

Luton Rugby Club
Wednesday 6th April 7PM
 
Anil Garcia was unable to attend in March as planed so we moved this important discussion back to April. Please attend your view is important.
 
 
Anil is researching
Cancer Patients' experiences on behalf of the
Mount Vernon Cancer Network.
 
 
The focus of this work is to assist
those who wish to return to work
following Cancer treatment.
 
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

March Meeting

Luton Rugby Club
Wednesday 2nd March 7PM
 
Anil Garcia who is researching
Cancer Patients' experiences of returning to work
following Cancer treatment will attend.
 
Have your say or learn from others.
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

 
 
There will be no
January Meeting this year.
 

February Meeting

 

Luton Rugby Club
Wednesday 2nd February 7PM
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

December Meeting

Luton Rugby Club
Wednesday 1st December 7PM
 
  Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

November Meeting

Luton Rugby Club
Wednesday 3rd November 7PM
 
Sam Hunt will be along to tell us about his group of four who will be attempting to complete a Half-Triathlon in the Luton Harpenden Area on the 22nd of December.
They will be raising funds for the Head and Neck Cancer Unit.
 
The Half Triathlon is based on the Ironman 70.3 where the participants have to complete a 1.2 Mile Swim, a 56 Mile Bike Rids followed by a 13.1 mile run. Hopefully Sam will have some breath left to tell us about the challenge and his preparation

 Please consider attending. New members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

October Meeting

Luton Rugby Club
Wednesday 6th October 7PM
 
Guest Speaker Sue Semper, who is the Macmillan Mount Vernon Cancer Network (MVCN) Cancer Survivorship Lead and Carol Glover will be presenting the National Cancer Survivorship Programme.
 
Carol will focus on the work that is being piloted at Mount Vernon Hospital within the head and neck cancer department

 Please consider attending new members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

September Meeting

Luton Rugby Club
Wednesday 1st September 7PM

 Please consider attending new members are very welcome.

Meet people like yourself in a relaxed atmosphere.

Bring a friend or carer if you like.

July Meeting

Luton Rugby Club
Wednesday 7th July 7PM

 Rob Bunyan will lead a discussion on Oral Hygiene and Dental care for Head and Neck Cancer patients.

Rob Bunyan is an Associate Specialist Oral & Maxillofacial Surgery at the L&D.

 

 

Here is the new Logo hope you like it

FORUM NOW OPEN

The Forum is an online meeting place where anyone affected by Head and Neck Cancer can talk to others who have had been in a similar position.

You can post anonymously if you prefer to. You can ask those questions that might be difficult face to face if you like.

It's a great place to keep in touch. You will also find details of the Hansg meetings our guests and special events.

Forum Click Here

To confirm the Head and Neck Social Group's support for K.T's Ice Cream project we are pleased to announce the formation of CoolAid.

CoolAid is the collective banner under which we hope everyone will come together to raise funds and awareness for K.T's project.

Luton Rugby Club be the first fundraisers to use the new logo at their Hawaiian Night on Saturday 30th of October.

For more details contact Derek Tidman web@hansg.co.uk

Luton Rugby Union Football Club have confirmed their commitment to the Head and Neck Social Group and the CoolAid Project which is the clubs chosen Good Cause for the season.

 

Please Complete the 1,000 People Project Survey
A Macmillan Initiative

More details in the Forum

Click Here

 
 

 
Head and Neck Social Group

 

The Luton and Dunstable Head and Neck Social Group is an informal gathering of individuals and carers that have been affected by cancer to the head or neck.

Our aim is to share experiences and support  each other. We can help you if you come and you can help us by coming.

The group meets the first Wednesday of each Month at 7pm. The Venue is The Luton Rugby Club

Everyone is welcome regardless of where you were treated. Please consider coming you will be made welcome.                     

New Venue. 1st Wednesday of each Month at The Luton Rugby Club. Click here for Details..

 

 

Hints and Tips for Swallowing

As a result of Jenny Hunt’s September talk on swallowing problems a number of personal recommendations were made by the members all of which have experienced varying degrees of Swallowing or Taste problems.

Please be aware that if you are having difficulty swallowing you should be under the care of a Speech and Language Therapist.

 

Tomatoes Tinned or Fried

Whilst fresh tomatoes might be difficult tinned or fried tomatoes with a meal assists swallowing.

 

Vivil Sugar Free Mints

 

 

          Actimel

Crisp Breads

Crisp breads or Rye Breads can sometimes be easier to eat rather than softer regular bread.

 

Fried Bread

While it might appear to be counter intuitive fried bread (or egg fried bread) is often easier to eat than ordinary bread and certainly easier than toast.

 

Taking Tablets

Members report that taking tablets with Milk rather than Water makes swallowing them easier.

 

Jellies and Trifles

When you are having trouble swallowing don’t ignore the things that are nice to eat just because you think you should be eating meat and two veg.

 

Slow Cookers

Slow Cookers are a great way of making food tender and having hot food available whenever you feel ready to eat.

Soups

Soups are an especially good way of adding moisture to rice dishes. Instant Miso soup is especially suited to oriental dishes.

 

 

Roasting Bags

Roasting bags help to keep as much moisture as possible in meat meals.

 

 

Gravy

Make extra gravy it helps to ease food down.

 

 

 

Warm Drinks

Having a warm or hot drink with a meal makes it easier to tolerate a wide range of foods.

 

Enjoy

 

“I scream, you scream, we all scream — for ice cream!”

Those of you who have been treated at the L&D will already know the hospital’s head and neck oncology dietician Katrina (K-T) Martinelli. K-T has been the driving force behind a campaign to have a soft ice cream machine installed as part of the specialist cancer unit.

The machine has now been installed on the ward and is providing high calorie, high protein food to patients. As many readers will already know head and neck cancer sufferers often have difficulty eating especially just after treatment.

K-T explained the benefits. “Ice cream is an acceptable food for most people so our patients will have available at all times a food which will not only help them achieve their nutritional requirements but that is easy to eat and will not cause embarrassment in the process. Confidence in eating and swallowing safely will be restored much quicker.”

Mr John Pickles, Divisional Director of Surgery and consultant Ear, Nose and Throat surgeon at the L&D said,

“Head and neck cancer patients are often admitted to Luton & Dunstable hospital with pre existing, nutritional problems since the site of this disease makes people more vulnerable to malnutrition even before diagnosis.  Nutrition plays a key role in successful treatment of cancer of the head and neck and the ice cream machine brings many benefits for our patients who can face a slow and arduous recovery after very complex surgery.” 

The money to purchase the ice-cream machine was donated by head and neck cancer patients and the hospital will underwrite the future maintenance costs.  Patients from the Cancer Service users and the Head and Neck Cancer Support Groups are backing the introduction of the ice-cream machine and will be promoting its use in the hospital.

Although its a simple idea the beneficial impact on patients cannot be underestimated. We hope this initiative will be rolled out elsewhere as it deserves to succeed.

The media also liked the idea with a TV crew turning up to talk with K-T and Ronnie Barbour inviting K-T on to the Nine on BBC 3 Counties. K-T turned in a great performance, which if you didn't catch, can be played in Windows Media Player from this site by clicking here. K-T and Ronnie. It will take a little time to load.

Contributions to support the maintenance or towards further machines would be welcome. If you wish to contribute you can email the Treasurer of the Head and Neck Social Group for details.


L&D Foundation Trust AGM

K-T took the Ice Cream Machine to the Foundation Trust's Annual Members Meeting on 20th September.Click on K-T & Spencer to enlarge

K-T is joined here by Spencer Colvin Chairman of the L&D and our very own James Lucas representing the Head and Neck Social Group.

Spencer Colvin is an enthusiastic supporter of K-T's CoolAid Project to improve the nutrition of Head and Neck Cancer Patients.

Hansg didn't miss the opportunity to rattle a tin for the CoolAid Project and we raised a few pounds towards maintenance of the machine.

Launch of CoolAid

To confirm the Head and Neck Social Group's support for K.T's Ice Cream project we are pleased to announce the formation of CoolAid.

CoolAid is the collective banner under which we hope everyone will come together to raise funds and awareness for K.T's project.

Luton Rugby Club be the first fundraisers to use the new logo at their Hawaiian Night on Saturday 30th of October.

For more details contact Derek Tidman web@hansg.co.uk

Relay for Life

We had another great day at the Luton Relay for Life event in Stockwood Park. Even though the weather in mid September can be variable the rain mostly held off and the sun shone on the Saturday.

Six or seven of us turned up from Hansg along with a few other faces that we recognised from other support and fund raising groups.

As usual Susan Blee was racing around forcing the whole thing to work. As the picture will attest, its almost impossible to stop her for enough time to take her picture.

As has become a tradition for Dave and I we managed to get another picture of Dave with the Mayor and Kelvin Hopkins the local MP.

Click on any picture and it will take you to the collection where you can click on any thumbnail to see the full size pictures.

 

Hawaiian Night at the Luton Rugby Club

Luton Rugby Union Football Club have confirmed their commitment to the Head and Neck Social Group and the CoolAid Project which is the clubs chosen Good Cause for the season.

Alongside their own Club development fundraising, Luton Rugby Club will also use its events program to raise money for CoolAid.

The first of these events will be a Hawaiian Night, to celebrate the beginning of the season and the end of summer. Taking place on Saturday 18th of September 2010 the night will commence directly after the 1st XV match versus Hereford at Newlands Road, Luton.

All supporters will gain free entry and parking, bars open at Midday, game kicks off at 3pm.

The Club will be pre-selling wristbands for the Hawaiian Night wristband wearers will benefit from special prices at the bar. Wristbands will be available at £5 this week at the club and at the match on Saturday. With a live band starting at 5pm, food and full bar available throughout the night, a great evening is predicted.

The second event will be held on Saturday 30th of October, with details for this event being confirmed within the coming month.

For further information please contact the Luton Rugby Union Football Club Office on 01582 720355.


A message from our

Chairman Hugh Mc Grath.

All of us have been diagnosed, treated or have cared for someone who has suffered from Head and Neck Cancer.

Some of us still have our sense of humour; some of us have even retained most of our intelligence. Some know how to cook, fix cars, sew, weld, paint and decorate, plumb, garden and possibly how to milk cows.

We can be grumpy sometimes, irritable at others. Sometimes we hate not being able to eat what we want. Other times we hanker after the way things used to taste. Occasionally we can be entertaining and good fun to be with.  

 We all have experience that we are happy to share. We all understand what its like to be launched back into the world with the collateral damage caused by surgery and radiotherapy.  

We don’t really do that much, we meet, we often have a guest who has a relevant skill and we chat for a bit.

Most of the time we just sit around getting to know each other.

What we would like is for you to join us so that we can have a bigger and better group. In order to make the group a little more social we have moved our venue to The Luton Rugby Club which is close by J10 of the M1.

We made the move to somewhere with a bar (coffee is also available) because we know some people just don’t like hospitals.

Our venue is a quiet private bar at the club where we can socialise or have presentations without being disturbed.

We can be a big help to those of you just coming to terms with the speed and savagery of what happened to you and in return you can help us grow into something worthwhile.

If you are a carer you are welcome to come along with or without your charge and see how we can help. If you have been treated elsewhere you are still very welcome.

Hugh

 
  Welcome to the L&D We are Macmillan Cancer Support